|Born||December 3, 1997 |
|Known for||progeria activism|
|Hayley's Progeria Page|
Diagnosed in 1999, Okines was born with progeria, a genetic disease that causes her to age eight times faster than the average person. This puts her projected lifespan to age thirteen. She frequently travels from England to Boston to receive new treatments in the United States.
Television appearancesOkines has been the subject of television specials both in Europe and in the United States. Discovery Health aired a special titled Extreme Aging: Hayley's Story, which focused on the balance of the disease being currently terminal but with a possible cure on the horizon. In England, a television documentary titled Extraordinary Lives also discusses Okines, her condition, and her options.
When she was ten years old, Okines was featured in "Hope for Hayley", an episode that was part of the English series Extraordinary People. The episode concerned Okines' trips to Boston for treatment.
She was featured in the second part of a three-part documentary series called Make Me Live Forever, in which presenter Michael Mosley investigated a number of proposed treatments to enable humans to extend their lifespan. Okines was discussed in relation to telomeres (short telomeres are a characteristic of Progeria) and their apparent role in the aging process.
She has also been featured in a report by Tara Brown the Australian version of 60 Minutes.