“ Fish Boy”

Eight-year-old Pan Xianhang known as “Fish Boy” by locals in the Eastern China province of Wenling, little Xianhang is covered from head-to-toe in thick, itchy scales.

Diagnosed at birth with the rare genetic disease Ichtyosis, Pan has lived his whole life with unbearable pain, often suffering from overheating and extreme itching. His severe skin abnormalities have affected the shape of his eyelids, nose, mouth, and ears, while also limiting movement of his arms and legs.

According to The Foundation for Ichthyosis & Related Skin Types, it is estimated that more than 16,000 babies are born with some form of Ichthyosis each year, varying in severity of symptoms